We try to address a wide range of needs but also recognize that every family and individual is unique. If there is a resource that you would like us to share that will help support those living with XP, please submit your resource suggestions to contact@xpfamilysupport.org
We try to address a wide range of needs but also recognize that every family and individual is unique. If there is a resource that you would like us to share that will help support those living with XP, please submit your resource suggestions to contact@xpfamilysupport.org
Great Wolf Lodge- https://www.greatwolf.com/
Wilderness Lodge Wisconsin Dells- https://www.wildernessresort.com/
Hotel with indoor pools- ask for pools to stay open later “make sure to meter before use”
Disneyland- Special needs pass
Nighttime skiing & tubing
National Parks- Disability Pass – America the Beautiful National Park Disability Pass https://store.usgs.gov/access-pass
Hilton Waikola- Kona- Has a cave for swimming that is UV safe. Hotel has tinted windows http://www.hiltonwaikoloavillage.com/
Atlanta Aquarium https://www.georgiaaquarium.org/
Atlanta Coca Cola Museum – https://www.worldofcoca-cola.com/
European Disability Pass- https://www.disabled-world.com/travel/europe/
Museums are typically safe
Smithsonian- https://www.si.edu/
Traveling in DC- Contact your local congressman they can assist with scheduled visits
Every year, the AAD sponsors a week of fishing, boating, swimming, water skiing, arts and crafts, and just plain fun. Under the expert care of dermatologists and nurses, the campers have the chance to share, play, and relax together. Many of the counselors have serious skin conditions as well and can provide support and advice to campers.
There is no fee for camp. Full scholarships, including transportation are provided by the American Academy of dermatology through generous donations. Please view the American Academy of Dermatology website at www.aad.org to see the locations of the camps (the Texas Camp Dermadillo is just one of the AAD camps) or go directly to Camp Discovery. Campers must be between 8 and 16 years old. To be a volunteer you must be 18 years or older. If you are interested in one of the camps, you may contact jmueller@aad.org or 847-240-1737, or contact your dermatologist.
