XPFSG Events
We believe in bringing our communities together to support families throughout their XP journey.
We believe in bringing our communities together to support families throughout their XP journey.
We believe in bringing our communities together to support families throughout their XP journey.
The Xeroderma Pigmentosum (XP) Family Support Group exists to improve the quality of life for people with XP and other diagnosed UV light conditions. The Xeroderma Pigmentosum Family Support Group (XPFSG) strives to create awareness and educate the public about XP, as well as to raise funds to promote research, create collaborations with international XP partner organizations, and provide family grants for UV protective equipment and holds a bi-annual XP Medical Conference and kids camp.