Celebrating over 20 years of Empowering Hope, Illuminating Lives, Envisioning a Future of Unity, and Supporting those living with XP
For 20+ years, XPFSG has focused on empowering and connecting XP patients, caregivers, and communities. Helping to foster understanding, resilience, and hope in navigating the challenges associated with this rare genetic condition. Together, we aim to promote awareness, advocate for improved access to care, and ultimately enhance the quality of life for those impacted by XP.
Testifying and advocating for people with XP and other sun sensitivities.
Kansas Governor Laura Kelly signs Senate Bill 63 making it legal to apply window film to the front windshield of a vehicle.
Providing a Voice at the Coalition of Skin Diseases
The American Academy of Dermatology was founded in 1938. It is the largest, most influential and representative dermatology group in the United States. With a membership of more than 20,000, it represents virtually all practicing dermatologists in the United States, as well as a growing number of international dermatologists.
The XPFSG is one of many organizations that are part of the Coalition of Skin Disease.
The Coalition of Skin Disease Hill Day provides the opportunity to advocate on behalf of Skin Disease patients with U.S. Senate and House Representatives.
