HOST A CHARITY EVENT
By hosting your own Charity event, you can work with your community to bring awareness and help raise funds for the XP families! Enjoy a night out while helping family in need!
By hosting your own Charity event, you can work with your community to bring awareness and help raise funds for the XP families! Enjoy a night out while helping family in need!
By hosting your own Charity event, you can work with your community to bring awareness and help raise funds for the XP families! Enjoy a night out while helping family in need!
To promote awareness, advocate for improved access to care and research, and ultimately enhance the quality for those impacted by XP. Learn more about our past charity events and contact us below to get involved!
$25 raised could provide UV protective gloves for an XP patient
$150 raised could provide a UV light meter for an XP family
$250 raised could provide a Welcome Care Kit for a newly diagnosed XP family (provides essential items including a UV meter and UV protective hood)
$500 raised could provide a sponsorship for an XP child to attend our biannual Kids Camp
$1000 raised could provide a sponsorship for an XP family to cover travel expenses for our biannual Medical Conference and Kids Camp.