News XP and Covid 19 Dear Patients and Family members Thank you for your participation in our research at the…michaelJune 1, 2020
News Meet Jax Meet Jax, a bubbly little boy with a big, bright smile that can light up…michaelMay 9, 2019
News Rare disease causes an extreme sensitivity to sunlight Everyone has sun-sensitive skin. It’s the reason we tan and sunburn. It’s why freckles, age…michaelJuly 15, 2018
News Living with extreme chronic skin cancer risk – AIMEE MILOTA’S STORY When my daughter Aimee was born, I noticed there was something different about her skin.…michaelMarch 23, 2018
News “Midnight Sun” as reviewed by TitaniumAmy Book Review: Midnight Sun by Trish Cook (soon to be a major motion picture) The…michaelFebruary 26, 2018
News How Xeroderma pigmentosum forces Riley McCoy, Dana Hills High homecoming queen, to fight sunlight every day (This is the second in an occasional series that will follow Riley McCoy through her…michaelOctober 5, 2017
News Dana Hills High School Student Who Battles Rare Skin Disease Named Homecoming Queen A 17-year-old girl with a rare condition that prevents her from exposing her skin during…michaelSeptember 21, 2017
News Riley McCoy, the girl who can’t go out in the sun Have you ever truly considered the sunset? Riley McCoy has. When you think about it,…michaelSeptember 19, 2017
News Center for Car Donations XP Family Support Group is a part of The Center for Car Donations. http://www.centerforcardonations.com Donations of…michaelJuly 2, 2016
News Film Gives Hope to Patients with Rare Disease An article from Window Film Mag.com - Click Here to ReadmichaelApril 20, 2016