INTERNATIONAL PARTNER ORGANIZATIONS
XP Sister Organizations
INTERNATIONAL PARTNER ORGANIZATIONS
XP Sister Organizations
Action for XP – To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease
France – Children of the Moon To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease.
We are the self-help group for all those affected and their relatives in Germany, Austria and Switzerland. We have existed since 2007 and do everything we can to help.
Good Samaritan International
XP Grupo Luz de Esperanza (XP Light of Hope Group) – We provide support and educational resources in English and Spanish. Our mission is to increase public awareness about XP worldwide, especially in the Spanish-speaking countries where resources or information about this disease are extremely scarce. We are the first bilingual English and Spanish support organization for people living with XP. Persons with XP look to us for suggestions on everyday living.
