OUR IMPACT
XPFSG exist to help improve the quality of life for people with XP and other diagnosed UV light conditions.
XPFSG exist to help improve the quality of life for people with XP and other diagnosed UV light conditions.
XPFSG exist to help improve the quality of life for people with XP and other diagnosed UV light conditions.
90% of every dollar donated helps strengthen families living with XP, giving them the tools to cope and live productive lives.
PFSG has helped alleviate some of the financial burdens for families along their UV protectant journey. We are approaching over $100,000 in UV protective equipment purchased to support XP families.
Through collaborations with our six International XP Partner Organizations, we can help XP families in need worldwide.
10+ Medical Conferences held and $750,000 spent in support of XP Families and to bring awareness to communities.
150+ Families Supported Since Inception
Supports Research & Passing Legislation