| TITLE | DESCRIPTION |
|---|---|
| XP and premature menopause | Reproductive Health in Xeroderma Pigmentosum |
| Blood First Edition Paper | Familial predisposition to TP53/complex karyotype MDS and leukemia in DNA repair-deficient xeroderma pigmentosum |
| Journal of the Frrata Storti Foundation | Predisposition to hematologic malignancies in patients with xeroderma pigmentosum |
| EBIOMedicine Research Paper | Fesetin is a senotherapeutic that extends health and lifespan |
| A Light in the Darkness | Article in Real Simple Magazine |
| XP in black South Africans | Study of fifteen South African patients |
| XP Africa | Skin cancers, blindness and anterior tongue mass in African brothers |
| XP in Zimbabwe | A retrospective case series |
| Living with XP | Comprehensive photoprotection for highly photosensitive patients |
| 10-year-old shines despite genetic disease | Story of 10-year-old Jessica Robinson |
| Riley McCoy lives with Xeroderma Pigmentosum | Profile of a 7-year old girl living with XP |
| EEOC Sues IDEX Corporation for Disability Discrimination | Company sued for firing an employee with cancer |
| Xeroderma Pigmentosum | Social Security Online Info Page |
| UV Gard by Sun-Gard | Continues to offer protection to child with rare skin condition. |
| Bricker granted trip through Ohio’s Make-A-Wish Program | Girl with XP granted trip to Orlando Theme Parks. |
| Photodynamic Therapy | Photodynamic Therapy in a Teenage Girl with Xeroderma Pigmentosum Type C. |
| Life with Xeroderma Pigmentosum | Special Project: Life with Xeroderma Pigmentosum by Ashley Day |
| Taunton girl | Family copes with rare skin condition. |
| SD Doctor’s Health Mission | May Change how skin cancer is treated. |
| TAG Students Article | TAG Students bring home trophy from LEGO League. |
| Aimee’s Ocean Room | Video of Aimee who has been fighting Xeroderma Pigmentosum (XP) since birth. |
| Shining a Light on XP | Informational article on Xeroderma Pgmentosum |
| Motorcycle prize in raffle fundraiser | Aricle about XP Family Support Group and the annual Harley Raffle. |
| Off to a healthy start at school | Article about Aimee Milota, a young girl with XP, going to school. |
| Mum praised for 10 years of fatal sunshine support group. | People with XP praised a Buckinghamshire mum on the 10th birthday of a support group she set up. |
| Hidden From Light | A story of compassion and hope for children afflicted with XP. |
| Allergic to sunlight | Local teen is child of the night. |
| Multiple Skin Cancers in Adults with Mutations in the XP-E (DDB2) DNA Repair Gene | A Journal of Investigative Dermatology advance online publication. |
| Guidance on Planning for Integration of Functional Needs Support Services in General Population Shelters | It provides recommendations on providing emergency sheltering services that are in compliance with disability-related federal laws. This document also describes common scenarios that shelter operators may encounter during emergencies. |
| A light in the dark: Peyton’s Story | Imagine having to hide from sunlight, avoiding windows for fear of being burned, dimming indoor lights. Courageous 3-year-old Peyton Madden has to do just that every minute of every day to survive. |
| Alex’s reward for courage | A young sufferer of a rare skin disorder has won an award in recognition of the bravery shown in dealing… |
| ‘Children of the moon’ hide from a deadly sun | Sacramento family adapts to challenge of caring for toddler with rare skin disorder (November 29, 20… |
| Debby Gets Help | Penbrook woman gets help for rare skin disorder |
| Despite rare disease, 7-year-old perseveres | A few months later and after much testing, Riley was diagnosed with Xeroderma Pigmentosum (XP), a ra… |
| Graycen – life beyond the shadows | Kim and Eric Beardslee weathered their daughter Graycen’s preschool years, but face new challenges i… |
| Into the light | Local girl with rare skin disease gets the chance to be ‘normal’ by attending camp |
| Living in the Shadows | Bay Area doctors join fight against a rare genetic skin disorder that afflicts an alarming number of… |
| LIVING WITH A RARE DISEASE – Eurordis | The doctors’ advice was to “let them live a normal life”. |
| Penbrook woman gets help for rare skin disorder | A mid-state Pennsylvania window tinting company installs UV-blocking film for free |
| Raffle will benefit girl with rare disease | XP Family Support group family the Bricker’s raise funds and awareness for children with Xeroderma P… |
| Rare genetic disorder threatens life of Scott County toddler | Graycen Beardslee is just like any other 2-year-old in the sense she loves playing with her dolls, h… |
| San Diego Doctor’s Global Health Mission May Change How Skin Cancer is Treated | San Diego Doctor’s Global Health Mission May Change How Skin Cancer is Treated |
| Seeing the light | Jeremy Lees can let the sun shine in – through newly filmed windows that protect him from harmful UV… |
| Staying out of the sun | The neighborhood kids now it’s close to bedtime when the Feltner kids come out to play |
| Tawewell boy recently diagnosed | The life of Peyton Chadwell, 11, has changed forever Recently diagnosed with XP, he and his family… |
| Dr. Bari Cunningham – Comprehensive Dermatology | Home of Dr. Bari Cunningham Comprehensive Dermatology practice |
| Online Resource for People with Disabilities | Provides quick and easy access to comprehensive information about disability programs, services, law… |
XP Articles and Publications
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2019-11-07T16:29:29+00:00