XP Articles and Publications

XP Articles and Publications 2022-07-15T14:38:22+00:00
Reproductive Health in Xeroderma Pigmentosum XP and premature menopause
Primary Ovarian insufficeincy in XP patient Primary Ovarian insufficeincy in XP patient
of premature aging
Thyroid nodules in xeroderma pigmentosum patients: a feature of premature aging Thyroid nodules in xeroderma pigmentosum patients: a feature
of premature aging
Efficacy of anti-programmed cell death-1XP and premature menopause Efficacy of anti-programmed cell death-1 immunotherapy
for skin carcinomas and melanoma metastases in a patient
with xeroderma pigmentosum
XP and premature menopause Reproductive Health in Xeroderma Pigmentosum
Blood First Edition Paper Familial predisposition to TP53/complex karyotype MDS and leukemia in DNA repair-deficient xeroderma pigmentosum
Journal of the Frrata Storti Foundation Predisposition to hematologic malignancies in patients with xeroderma pigmentosum
EBIOMedicine Research Paper Fesetin is a senotherapeutic that extends health and lifespan
A Light in the Darkness Article in Real Simple Magazine
XP in black South Africans Study of fifteen South African patients
XP Africa Skin cancers, blindness and anterior tongue mass in African brothers
XP in Zimbabwe A retrospective case series
Living with XP Comprehensive photoprotection for highly photosensitive patients
10-year-old shines despite genetic disease Story of 10-year-old Jessica Robinson
Riley McCoy lives with Xeroderma Pigmentosum Profile of a 7-year old girl living with XP
EEOC Sues IDEX Corporation for Disability Discrimination Company sued for firing an employee with cancer
Xeroderma Pigmentosum Social Security Online Info Page
UV Gard by Sun-Gard Continues to offer protection to child with rare skin condition.
Bricker granted trip through Ohio’s Make-A-Wish Program Girl with XP granted trip to Orlando Theme Parks.
Photodynamic Therapy Photodynamic Therapy in a Teenage Girl with Xeroderma Pigmentosum Type C.
Life with Xeroderma Pigmentosum Special Project: Life with Xeroderma Pigmentosum by Ashley Day
Taunton girl Family copes with rare skin condition.
SD Doctor’s Health Mission May Change how skin cancer is treated.
TAG Students Article TAG Students bring home trophy from LEGO League.
Aimee’s Ocean Room Video of Aimee who has been fighting Xeroderma Pigmentosum (XP) since birth.
Shining a Light on XP Informational article on Xeroderma Pgmentosum
Motorcycle prize in raffle fundraiser Aricle about XP Family Support Group and the annual Harley Raffle.
Off to a healthy start at school Article about Aimee Milota, a young girl with XP, going to school.
Mum praised for 10 years of fatal sunshine support group. People with XP praised a Buckinghamshire mum on the 10th birthday of a support group she set up.
Hidden From Light A story of compassion and hope for children afflicted with XP.
Allergic to sunlight Local teen is child of the night.
Multiple Skin Cancers in Adults with Mutations in the XP-E (DDB2) DNA Repair Gene A Journal of Investigative Dermatology advance online publication.
Guidance on Planning for Integration of Functional Needs Support Services in General Population Shelters  It provides recommendations on providing emergency sheltering services that are in compliance with disability-related federal laws. This document also describes common scenarios that shelter operators may encounter during emergencies.
A light in the dark: Peyton’s Story Imagine having to hide from sunlight, avoiding windows for fear of being burned, dimming indoor lights. Courageous 3-year-old Peyton Madden has to do just that every minute of every day to survive.
Alex’s reward for courage A young sufferer of a rare skin disorder has won an award in recognition of the bravery shown in dealing…
‘Children of the moon’ hide from a deadly sun Sacramento family adapts to challenge of caring for toddler with rare skin disorder (November 29, 20…
Debby Gets Help Penbrook woman gets help for rare skin disorder
Despite rare disease, 7-year-old perseveres A few months later and after much testing, Riley was diagnosed with Xeroderma Pigmentosum (XP), a ra…
Graycen – life beyond the shadows Kim and Eric Beardslee weathered their daughter Graycen’s preschool years, but face new challenges i…
Into the light Local girl with rare skin disease gets the chance to be ‘normal’ by attending camp
Living in the Shadows Bay Area doctors join fight against a rare genetic skin disorder that afflicts an alarming number of…
LIVING WITH A RARE DISEASE – Eurordis The doctors’ advice was to “let them live a normal life”.
Penbrook woman gets help for rare skin disorder A mid-state Pennsylvania window tinting company installs UV-blocking film for free
Raffle will benefit girl with rare disease XP Family Support group family the Bricker’s raise funds and awareness for children with Xeroderma P…
Rare genetic disorder threatens life of Scott County toddler Graycen Beardslee is just like any other 2-year-old in the sense she loves playing with her dolls, h…
San Diego Doctor’s Global Health Mission May Change How Skin Cancer is Treated San Diego Doctor’s Global Health Mission May Change How Skin Cancer is Treated
Seeing the light Jeremy Lees can let the sun shine in – through newly filmed windows that protect him from harmful UV…
Staying out of the sun The neighborhood kids now it’s close to bedtime when the Feltner kids come out to play
Tawewell boy recently diagnosed The life of Peyton Chadwell, 11, has changed forever Recently diagnosed with XP, he and his family…
Dr. Bari Cunningham – Comprehensive Dermatology Home of Dr. Bari Cunningham Comprehensive Dermatology practice
Online Resource for People with Disabilities Provides quick and easy access to comprehensive information about disability programs, services, law…