xp-admin, Author at XP Family Support Group

This author has not yet filled in any details.
So far xp-admin has created 19 blog entries.

Technology Raffle

Technology Raffle xp-admin 2022-09-01T16:47:06+00:00

Dear Patients and Family members Thank you for your participation [...]

XP and Covid 19 xp-admin 2022-04-12T15:51:50+00:00

Meet Jax, a bubbly little boy with a big, bright [...]

Meet Jax xp-admin 2022-04-12T15:51:50+00:00

Everyone has sun-sensitive skin. It’s the reason we tan and [...]

Rare disease causes an extreme sensitivity to sunlight xp-admin 2022-04-12T15:51:51+00:00

Buy Your Tickets [...]

Anton Jakovac Memorial Golf Tournament xp-admin 2022-04-12T15:51:51+00:00

When my daughter Aimee was born, I noticed there was [...]

Living with extreme chronic skin cancer risk – AIMEE MILOTA’S STORY xp-admin 2022-04-12T15:51:51+00:00

Book Review: Midnight Sun by Trish Cook (soon to be [...]

“Midnight Sun” as reviewed by TitaniumAmy xp-admin 2022-04-12T15:51:51+00:00

(This is the second in an occasional series that will [...]

How Xeroderma pigmentosum forces Riley McCoy, Dana Hills High homecoming queen, to fight sunlight every day xp-admin 2022-04-12T15:51:51+00:00

A 17-year-old girl with a rare condition that prevents her [...]

Dana Hills High School Student Who Battles Rare Skin Disease Named Homecoming Queen xp-admin 2022-04-12T15:51:51+00:00

She stood under the football stadium lights, in the spotlight, [...]

Homecoming queen dream comes true for Riley McCoy xp-admin 2022-04-12T15:51:51+00:00