xp-admin, Author at XP Family Support Group

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So far xp-admin has created 19 blog entries.

XP and Covid 19

Dear Patients and Family members Thank you for your participation [...]

XP and Covid 19 xp-admin 2020-06-01T13:44:24+00:00

XP Medical Conference 2021 – Minneapolis xp-admin 2020-08-05T13:55:29+00:00

Meet Jax, a bubbly little boy with a big, bright [...]

Meet Jax xp-admin 2019-05-09T19:06:00+00:00

Congratulations to our Technology Raffle Winners! 1st – Leticia Krohn [...]

Technology Raffle Winners xp-admin 2018-11-14T23:24:37+00:00

Everyone has sun-sensitive skin. It’s the reason we tan and [...]

Rare disease causes an extreme sensitivity to sunlight xp-admin 2018-07-15T22:15:02+00:00

Buy Your Tickets [...]

Anton Jakovac Memorial Golf Tournament xp-admin 2019-03-29T22:26:16+00:00

When my daughter Aimee was born, I noticed there was [...]

Living with extreme chronic skin cancer risk – AIMEE MILOTA’S STORY xp-admin 2018-03-23T13:38:17+00:00

Book Review: Midnight Sun by Trish Cook (soon to be [...]

“Midnight Sun” as reviewed by TitaniumAmy xp-admin 2018-02-26T16:37:40+00:00

(This is the second in an occasional series that will [...]

How Xeroderma pigmentosum forces Riley McCoy, Dana Hills High homecoming queen, to fight sunlight every day xp-admin 2018-03-12T17:12:51+00:00

A 17-year-old girl with a rare condition that prevents her [...]

Dana Hills High School Student Who Battles Rare Skin Disease Named Homecoming Queen xp-admin 2017-09-21T13:44:35+00:00