Charles Cole Hayes

Born: October 23, 1994
Died: December 03, 2014

A resident of Roseland earned his angel wings at 9:50 PM on Wednesday, December 3, 2014 at Tulane Medical Center in New Orleans , surrounded by loved ones, after a long battle with cancer. He was born October 23, 1994 in Mesquite, TX and was 20 years of age. He was a graduate of Sumner High School, Class of 2014. Cole was an amazing young man who cared more for others than himself and was close to God. The sparkle in his eye showed most while entertaining others by singing and playing his guitar. He never met a stranger and was an inspiration to his family and friends. Those who knew him, loved him. Fly high our sweet angel. He is survived by grandparents, Paul and Cathy Hancock; parents, Chuck and Rebecca Hayes; grandparents, Charles and Teena Hayes; sister, Meagan Hayes and Brent Ridder; brother, Joshua Morgan; great grandmother, Colene Smith; uncle, Bruce Hayes and wife, Melanie; aunts, Shannon Ingraffia and husband, Sam, Loree Lewis and husband, Steve and Andi Hancock; cousins, Brennan Ingraffia, Cory Hayes, Samantha Ingraffia, Jordyn Hayes, Savanna Ingraffia, Lucy Hayes, Lauren and Destinee Lewis and Christopher, Nicole and Michael Wages and niece, Kayleigh Morgan. Preceded in death by his great grandfather, Glennis “Junior” Smith and great grandmother, Rosa Hayes. Visitation at Mt. Nebo Baptist Church from 10 AM until religious services at 2 PM on Wednesday, December 10, 2014. Services conducted by Rev. Larry Blades and Rev. Randel Carmadelle. Interment Russelltown Cemetery, Roseland. McKneely Funeral Home, Amite, in charge of arrangements. For an online guestbook, visit


Stacy Van Peursem

Please check Bonnie Sander’s Facebook page for more information on funeral services.

Stacy, loving brother to Bonnie Sanders (XP) passed away on September 13, 2013.  Financial remembrances can be made to XP Family Support Group.

Donate Now


Rosaline “Rosie” Riffle 
6/17/1922 – 5/2/2013

Please Click Here to view full memorial

Rosie had a family member who suffers from Xeroderma Pigmentosum and wanted Memorial Contributions to go to the XP Family Support Group.


Christopher Jones
6/26/1974 – 2/9/2013

Chris was a member of the original group of NIH XP patients who participated in a study of oral retinoids for chemo prevention of skin cancer; he started in the study when he was 10 years old. Over the 15 plus years that Chris participated in studies at the NIH he was always willing to do what was asked of him; not always an easy task for a young boy and adolescent. When Chris began developing symptoms of XP not much was known about the condition and there was little effective treatment other than removing the skin cancers. Over the course of his life he had many hundreds of skin cancers. Despite all these surgeries he remained a pleasant and easy to talk with person. As his disease took more of a toll on his body he was not able to go to school or work outside the home. However, he was a whiz with a computer and became a beta tester for an online gaming site, Everquest. He had over 2000 friends on the internet and there were hundreds of posts on his Facebook site when he passed. When Chris knew that his battle with cancer was coming to an end, he contacted Dr. Kraemer and asked if we would like his body for one final study. Chris was so touched to know that his participation in the early studies of retinoids had helped other XP patients with multiple cancers; he was also proud that his contributions had helped many other cancer patients whose cancers responded to retinoid treatments. Chris was a special guy and many people throughout the world continue to benefit from his strength, kindness and courage. He will be missed by all who knew him.


Lillie Mae Malkowsky , loving mother, grandmother and great grandmother, born February 23, 1931 in Victoria, Texas to Edward and Ottelia Blaschke Waida and died December 24, 2012 after a long battle with Alzheimers. She was preceded in death by her husband Ernest Malkowsky and son in law Kenneth P. Mueller. She is survived by her brother Lawrence H (Bud) and his wife Hazel Waida, and her children Kathleen Mueller, Gloria and Ken Henderson, James and Cindy Malkowsky, Steven and Diane Malkowsky, Gail and Rick Behrndt, and John and Jane Malkowsky. Grandchildren Jennifer and Paula Mueller, Kimberly and Aaron Olson, Chris and Misty Henderson, Don and Shannon Henderson, Laura and Gary Rodgers, Sarah E. and Brooke Malkowsky, Brandon and Sarah E.R. Malkowsky, Ashley Mitchell and Joseph Valdez, Stephanie and Ryan Morrell, Rebecca Malkowsky, Lisa and Jason Campbell, Jessica Robinson, Clayton, Travis, Austin,and  Evan Malkowsky and Adam Folden. Great grandchildren Chase and Wyatt Henderson, Parker Henderson, Clara Rose Malkowsky, Dakota Morrell, Presley Rodgers, Dean Olson, and Olivia Valdez.

She was an active member of St. Ambrose’s Catholic Church Community. She was involved in the Altar and Rosary Society, Bereavement Committee and the Golden Youth Club. She also volunteered at MANNA.
Visitation will be from 5:00-8:00 p.m. on Thursday, December 27, 2012. Rosary will be recited at 7:00 p.m. at the Chapel of Pat H. Foley Funeral Home. Funeral Mass will be celebrated at 10:00 a.m. on Friday, December 28, 2012 at St. Ambrose Catholic Church, 4213 Mangum Rd, with Father Clint Ressler Celebrant, Rite of Committal Houston National Cemetery on Thursday, January 3, 2013 at 10:00AM. In lieu of flowers, donations may be made to a charity of your choice or Xeroderma Pigmentosum Family Support Group at 8495 Folsom Blvd. Ste 1 Sacramento, CA 95826. XP is a rare disease that affects Lillie Mae’s granddaughter Jessica.


In Loving Memory of William (Bill) Evans

The XP Family Support Group mourns the passing of William (Bill) Evans, father of XPFSG Executive Director Michele Milota and grandfather to Aimee. Bill enthusiastically supported the XPFSG and was present at many fundraising events. Bill was also a tremendous emotional support through Aimee’s diagnosis of XP and the creation of the XPFSG. Bill will be dearly missed by grandchildren Alex, Christian, Aimee and Katelyn, daughter Michele and son-in-law Jeff as well as the XPFSG family. To make a donation to the XPFSG in honor of Bill, please click here.


Normagene ‘Gene’ Cook
(April 9, 1929 – February 4, 2011)

Council Grove, KS –Normagene ‘Gene’ Cook, age 81, died Friday, February 4, 2011 at her home in Council Grove, Kansas. She was born April 9, 1929 in Coats, KS the daughter of Melvin Charles and Cora Gertrude (Luce) Cozens. On July 24, 1949 she married Harold D. Cook in Coats, KS, he preceded her in death on August 2, 2000.
Gene was a member of the First United Methodist Church in Pratt, the 50/50 Sunday School Class, Jr. Mother’s Club, ladies bowling organizations, Green Valley Ladies Golf and Saratoga Community Club.
She is survived by two daughters: Marsha Ioerger of Manhattan, KS and Melanie & husband Rob Madden of Council Grove, KS, two sisters: Mildred Eubank and Martha Norris both of Coats, KS and four grandchildren: Tracy and Carl Purser of Norman, OK, Kyle and Sarah Madden of El Dorado, KS, Katie and Thad Davidson of Emporia, KS and Abby Heraud of France and four great grandchildren, one of whom has XP. She was preceded in death by a daughter, Charlotte Cook.
Friends may sign the register book Thursday and Friday from 9 a.m. – 8 p.m. at Larrison Mortuary, 300 Country Club Road, Pratt. Memorial service will be Saturday, February 12, 2011 at 10:00 a.m. at Larrison Mortuary, Pratt with Chaplain Ron Moser presiding. Inurnment will be in Greenlawn Cemetery in Pratt, KS.
Memorials may be made to XP Family Support Group (Xeroderma Pigmentosum is a rare genetic disease where a person’s DNA lacks the ability to repair damage from ultraviolet light) in care of the mortuary. Friends may leave condolences for the family at


HARRIS, Anne S. (Speelman) Of Winchester, January 7, 2011, Age 84. Wife of the late George B. Harris, Jr. Devoted mother of Andrew J. Harris and his wife Laura of Washington, DC, Amy L. Harris of Wilton, CT, Susan E. Crain and her husband Bill of Manhattan Beach, CA, and William P. Harris and his wife Kathleen of Arlington. Cherished Grandmother of Amanda, Meghan, Conor, Joseph, George, Edward, William P. Jr., Edward (Mac) M., Anne E., and Emma Crain. Funeral from the Lane Funeral Home, 760 Main St. (Rte 38) WINCHESTER on Thursday, January 13, 2011 at 9 A.M., followed By A Mass of Christian Burial at St. Eulalia Church, 50 Ridge St. Winchester at 10 A.M. Relatives and friends are kindly invited to attend. Visiting hours will be held in the Funeral Home on Wednesday, January 12th from 4-8 P.M. Interment Wildwood Cemetery, Winchester. At the families request in Lieu of flowers Donation’s may be made in Anne’s memory to: XP Family support Group 8495 Folsom Blvd. Suite #1 Sacramento, CA 95826

Anne Harris was an active support of the XP Family Support Group.  Her darling granddaughter Emma has XP.


The XP Family Support Group mourns the loss of Anton (Tony) Jakovac, beloved Uncle to an XP child and supporter of the XP Family Support Group.

SACRAMENTO, CALIFORNIA — Jerry Milota, 75, died Jan. 12, 2010. Jerry, a grandfather to an XP child, has been a great supporter of the XP Family Support Group.  His great loves were his family, friends, and RV, and especially traveling with his wife, Sandy, and spending time with his family and friends.

SPRUCE PINE , ALABAMA — Kevin Charles Swinney, 35, died Tuesday, Jan. 12, 2010.  Kevin, who was diagnosed at a very young age with XP, lived life fully.

EL SALVADOR — Lenis Alvarenga, 19, died in the early hours of Christmas morning, Dec. 25, 2010.  Lenis had struggled valiantly against XP and the cancer she eventually succombed to, coming to the US seeking the best medical care.  When the system here wouldn’t work for Lenis, the XP Family Support Group arranged for her return to El Salvador and sent a medical team to her home city to perform surgery.

Latoya Braxton passed away on October 15, 2009. Latoya always had a smile on her face. She had just celebrated her 24th birthday. Her mother Alisha and sister Tiffany survive her.

Jill Suzanne Smith, 44, passed away July 29, 2009, at home in West Virginia. Jill’s loving, sweet, and kind nature will be missed and long remembered, especially by those at the Special Needs Adult Program at St. Andrew United Methodist Church in St. Albans.

Leanndra Dawn Nez died June 6, 2009, in New Mexico. Leanndra was an 8th grader who loved to travel, socialize, listen to music and collect monkeys. She was preceded in death by her brother, Darnell A. Nez who also had XP.

On February 17, 2008, Merve Uluyardimci succumbed to a bacterial infection a week after being rushed to the hospital with blood poisoning. Merve and Ferhat Sömnez had been married exactly 11 months and lived in Germany. Merve is remembered as an amazing young woman, full of life. She took ill during the time many were gathered at Owl Patrol in England. She died at the age of 23.

We will miss them and keep their families close in our hearts!