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michael2023-02-16 16:21:482024-09-30 21:41:21Intercollegiate Collaboration Provides Life-saving UV Protective Hats for Children1
In a Million
Xeroderma Pigmentosa (XP) is a rare autosomal recessive genetic disorder that affects about one in one million people in the United States.
20
Percent
Roughly 20% of patients affected with XP develop a progressive neurological disease.
50
Percent
Approximately 50% of individuals with XP experience acute sun sensitivity within the first few months of life.
Cases of Reported XP Patients in the United States
Your support makes a difference for XP Families
The XP Family Support Group (XPFSG) supports many patients and their families with new patients being diagnosed every year. Your donation will help us expand our reach and provide essential resources to those affected by XP.
Help Us Reach Our $50,000 Annual Fundraising Goal.
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michael2017-10-05 20:24:142017-10-05 20:24:14How Xeroderma pigmentosum forces Riley McCoy, Dana Hills High homecoming queen, to fight sunlight every day
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michael2016-04-20 20:37:532016-04-20 20:37:53Film Gives Hope to Patients with Rare DiseaseSign Up For Our Newsletter
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